I’m writing this on November 7, before we go to visit the other set of grandchildren. This is my last chance for a while, because a week from November 8 is when I get my first knee surgery, and after that, until the doctor tells me otherwise, I won’t be allowed to sit up for more than an hour at a time. We can still visit the other set of grandchildren, but this set lives too far away.
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We have to leave their house before 5:00 PM because they have something in Sh’s family that starts then, so we’ll leave early enough to drive around Utah Lake. It’s almost exactly the size of the Sea of Galilee, so T often calls it that. The Jordan flows north from it into Great Salt Lake, just as the original Jordan flows north from the Sea of Galilee to the Salt Sea (more often called the Dead Sea). (I should explain that the set of grandchildren living in Salt Lake City are the offspring of T’s daughter B and her husband, Sp. The set we are visiting today are the offspring of T’s son, J, and his wife, Sh, and of course we’re visiting the parents as well as the children. They live in a brand new subdivision and therefore were the only family members who didn’t use their legacy to improve their home. Their home is already as improved as it can get.
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But with their son, B, ill–he has only half of chromosome 17–they have a use for every penny. I’m inserting some information about his problems.
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“How common is Smith-Magenis syndrome?
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“Smith-Magenis syndrome affects at least 1 in 25,000 individuals worldwide. Researchers believe that many people with this condition are not diagnosed, however, so the true prevalence may be closer to 1 in 15,000 individuals.
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“What are the genetic changes related to Smith-Magenis syndrome?
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“Most people with Smith-Magenis syndrome have a deletion of genetic material from a specific region of chromosome 17. Although this region contains multiple genes, researchers believe that the loss of one particular gene, RAI1, in each cell is responsible for most of the characteristic features of this condition. The loss of other genes in the deleted region may help explain why the features of Smith-Magenis syndrome vary among affected individuals.”
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Right now B has a service dog who can tell when he’s likely to begin a tantrum or a convulsion, and the dog even knows whether to sit on B’s feet or to go get Sh or J. She’s a retriever, and when she dies he’ll have to have a replacement. He may never be able to live on his own, and he will always need a service dog. A lifetime supply of service dogs is enough to eat a large legacy, though T is working hard to make it a larger one.
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It’s sad when a child who clearly is intelligent can’t read, speak, or be toilet trained at the age of eight. But although we were told that he wouldn’t learn to speak until he was about ten, and might never learn to read, he is speaking at the age of eight, has learned a lot of words by “see and say,” and can sound out all the vowels and some consonants. Also, he can figure out how anything works. When I got my exercise rower, all the children played with it for a while, but B is the only one who figured out where to put the handles when he was through with it. He’s very fond of taking things apart and then–if possible–putting them back together again. He is retarded in the sense of being slow to learn, but he is not stupid. T got him a chess set for his birthday–he plays with it a lot but is not quite ready to learn yet–and he is getting an extremely nice abacus for Christmas. J and Sh were already talking about getting him one, so when T called to say he had found a good one in a catalog and ask whether he could get for B, they were delighted. In addition, I’m giving each set of grandchildren a copy of volumes 1-4 of Uncle Arthur’s Bedtime Stories. They’re antique, and it took me quite a while to locate two sets.
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E, by contrast, is extremely bright and advanced in her school work. She’s rarely jealous of the extra attention B has to have, and often tries to mother him herself as best she can. She dances, sings, plays the piano, and does umpteen other things.
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The doctors said that Sh couldn’t have any more children, but as much trouble as it takes to care for B, I’ve wondered whether she could manage to take care of another child anyway. At least J has been able to provide her with a very large project room, with her computer and her sewing and crafts spread out as she wants them spread. And today we learned that another child will soon be on the way! They were thinking of adopting, and then a neighbor came and told them that the Spirit told her to offer to be a surrogate for another child for them!!! So they did the necessary tests to be sure there wouldn’t be any genetic clashes, they’ve started the daily shots, and the day after Thanksgiving the eggs will be removed from Sh, combined with J’s sperm, and implanted into the surrogate. This makes the baby (–ies) due around the end of August, if he/she/they goes/go to full term.
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Now, why in the world did Sh decide to put up her Christmas tree in the middle of November? I can’t imagine, can you? I can see reasons to hope this is a boy, and I can see reasons to hope this is a girl, so I guess I hope it is twins. And the kind neighbor deserves twenty extra stars in her crown for this. I wondered when I entered the family room why Sh looked like the cat that ate the canary, with yellow feathers floating all over its face. No, really, she looked like a completely comfy early-middle-age cat with a big smile on its face. I found out later that T had known for two months about the surrogate, but nobody wanted me to know until after all the tests were finished and specific plans were made, and then J and Sh should tell me themslves.
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Well, E and B will be good siblings. E was jealous for a while about all the attention B got, and B will be jealous for a while about all the attention the baby (–ies) will get, but he’ll get over it just as E got over it. And so part of J’s legacy from his grandmother is to get her another great-grandchild. I’m rather proud of this family. None of us have gone out and done anything stupid with our legacy; we have all chosen wisely. T and I probably look like we did the silliest thing, because we’ve spent so much money on the yard, but we’ve had the worst yard in our neighborhood for twenty years, and finally getting it looking good is important. Besides that, we’ve been paying Manny and he has been supplying money to relatives both here and in Mexico. I think that the relatively small amount we’ve paid him has gone to support or help to support at least five families.
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Both of T’s offspring have large maps on the wall. Sp and B, who love to travel and can get special fares and accommodations because of B’s connection with travel bureaus, have marked on their map every place they have been. J and Sh haven’t marked anything on their huge map, but both sets of children can find places on the world map, and are very scornful of people who don’t know where places are. B gets a “You’re kidding me; nobody is that stupid” when he is told that most people can’t find whatever place he has just pointed to. T gave all the children except O, who is only two, day planners. When B found out that his day planner had MAPS in it! he was overjoyed. His sister, meanwhile, was asking if she could make notes of her appointments with her orthodontist in it. Sh told her that she could do that, and she could write down homework assignments, and whatever else she wanted to write in.
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I remember that when J was about the age his daughter is now, we would take the children to the airport–this was when anybody could go through the security gates–and send him to find some particular gate and come back and describe it. He always succeeded. He was later the Utah geography bee champion, although he washed out quickly in Washington, D.C., when they asked him something he hadn’t come across.
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Sh and J don’t have time for a garden, but B and Sp do. They couldn’t have one this year because they spent the summer with Sp’s parents while their house was being remodeled, but they will have one again next year. Considering that B is due to hatch in the spring, that’ll be a lot of work, but oh! If you could see her kitchen! She is prepared to do ANYTHING in it.
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I may get a second copy of Getting Started in Permaculture to give them for Christmas. When I first saw the book advertised, I was very puzzled, because to my mind, permaculture is planting perennials, and there really aren’t very many perennial vegetables, although most fruits, in the right climate zones, are perennial. Let’s see–rhubarb, asparagus, Jerusalem artichoke, horseradish, mint . . . that’s all I can think of except green artichokes, which are not perennial in this area . . . and I have all of it except the asparagus, which I’ll start inside during the winter so it’ll be ready to go outside in the spring. I’m planting 300 Mary Washington seeds, and as the years go by I’ll pull out the female plants, which are easy to spot because they have red berries on them, until I have an all-male asparagus bed. And no, it wouldn’t be cheaper to grow Jersey Knight. I bought 300 asparagus seeds for three dollars. Compare that to thirty-odd dollars for ten Jersey Knight. I’ll pull out the female plants, thank you.
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But permaculture turns out to be about preparing garden beds that you don’t have to dig and/or till every year. (See my reviews of Square Foot Gardening and Lasagna Gardening.) If you combine permanent beds that you have made weed-free, and normal crop rotation, your garden should produce more and more every year, while your work decreases every year (until, of course, you get the produce inside, where you have to can, freeze, bottle, or dry it).
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Friday Manny picked about a quarter of my Jerusalem artichokes. He showed me the bucket, and of course they were covered with soil and some of them were stuck together. I had to run back inside to do something else, and when I got back out, all the artichokes had been separated from the soil and washed. The bucket was sitting neatly in the barn. The rest of the crop will stay in the ground for the winter. If we mulch it heavily enough (and where is the mouse in my pocket that makes a we; I mean, if Manny mulches it heavily enough) they will be fine all summer and into the spring. Oh how I wish that we had the money to hire him fulltime and permanently! He had to leave early Saturday, because Teresa had a bad reaction to the flu shot she got the day before, and although she managed to talk Manny into not taking her to the e-room when she had the first two attacks, the third one was so bad her mother, who lives with them, called an ambulance, and the EMTs are not as easily talked around as Manny is. So they hauled her off in an ambulance and her mother got on the phone and screamed for Manny. I knew when I walked into the barn that Manny was talking with his mother-in-law, because he was speaking Spanish, which he tries to avoid because he’s working on getting English into his subconscious.
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I swear, if anything happened to Manny, that whole family–including brothers-in-law, sisters-in-law, sons-in-law, daughters-in-law, grandchildren–would implode. I said that to Manny yesterday, and he nodded soberly, with the usual twinkle in his eye not visible. He’s about 4’11″, maybe 135 # (I know he’s lost 34 pounds since he started working for us, because he told me so), strong as an ox, determined as a mule, and devout as a nun, though since he’s LDS he wouldn’t appreciate that comparison. But anybody who carries the weight of responsibility that he carries has to be devout to survive. And HE has bad knees, gout, and diabetes. But he hasn’t got time to stop and feel sorry for himself, because he’s too busy caring for everybody else’s problems. He’s embarrassed when he has to come and ask me for pain meds, but I keep telling him not to be embarrassed. I mean, he asks only for Tylenol and ibuprofen. It’s not as if he were asking for codeine or dilaudid, not that I would give it to him if I had it. Some things it’s a violation of federal law to share. He says the Lord always provides, even if it’s just enough for that moment. So he knows not to worry about tomorrow’s problems, because tomorrow’s problems belong to tomorrow, and the Lord will take care of them in due time.
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My husband, T, doesn’t do yards; we’re even because I don’t do vacuum cleaners or brooms. But he knows enough to know how much Manny is doing, and he greatly admires and respects him. So Manny and Teresa are always in our family prayers. I’m not able to work much in the yard; theoretically, by next spring, with two new knees and a lot of physical therapy, I should be able to do far more of my own yard work.
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Half the apricot leaves are on the ground now, and I can’ see any of Alicia’s garden. I’ve got to move the hops while I still know where they are. They’ll be growing on part of the clothesline, on which I no longer hang clothes. I just want them long enough to make some hops pillows, and after I’ve done that I’ll probably let at least one of them, maybe both, die. As to the leaves, I need to put four inches of mulch on the strawberry bed, and I don’t know whether I have enough or not. I hope so. We quit taking the newspaper quite a while ago.
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We’re doing permaculture all around the edges of the backyard. On the north side of the fence we’re planting red grapes, then there will be a narrow walkway of cast stone, and on the other side of that we already have planted the raspberries, and I’ll plant the blackberries this winter in the barn, so they too can go out in the spring. Manny built a grand wooden frame to hold the bramble crops (that includes anything like blackberries, raspberries, dewberries, and so forth). So we’ll have two sets of permaculture fruit with a walkway between them. Then in the back (west) side of the yard will be the green grapes–considerably more of them than of the red grapes, and yes I know that red grapes have more nutrition. I just happen to prefer the green grapes anyway. Maybe I’ll make some raisins, and/or some grape leather. There’s enough space in front of the grapes that I can plant several crops–the Hopi blue corn, the carrots, the chard, the lettuce (though I might plant it in the front south side, because it’s very shady because of the neighbor’s tree and our tree), and I don’t know yet what-all else. The south side of the backyard will be for the asparagus in the west side of the yard, where it is not shady, and the green beans will be in the east side of the yard, where it is shady about half the day. This is the last time for three years that I can plant beans there; next year I’ll have to rotate it, and I haven’t decided how. The tomatoes will be with the asparagus, because the two get along very well, and there’s enough asparagus that I can plant tomatoes in a different part of the yard next year and still have plenty of room. Peppers of course–both sweet peppers and fireless jalapeños. I love jalapeños, but I prefer to be able to taste the peppers instead of having my mouth on fire. There are at least two fireless jalapeños now, but I’ll probably plant señorita peppers from Nichols Garden Nursery. I might or might not also plant some hardy kiwi fruit.
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I recommend that you spent part of your winter reading at least one book on permaculture–this one for preference, if you’re unused to the idea of permaculture, and others if you’re more familiar with it or have learned all you need to from it. If you are tempted not to bother with reading it, consider the weeds and how they grow. Would you rather weed or read? You’ll find a number of plants that you can grow in the interstices of garden walks. I’m planting two flats of walk-on-me thyme. It oght to do very well where the weeds now live, and smother out the weeds. I’m also growing some Scottish moss for the same reason. The book suggests more plants you might use, depending on where you are.
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Tuesday I’ll be talking about Jerry Baker’s old-time gardening secrets, many of which he learned from his grandmother. Like most gardening books, it’s very enjoyable.